You Don’t Know What You Don’t Know: What I Wish I Had Known Earlier
You don’t know what you don’t know. Here are the lessons I wish I had learned earlierand how they can help disability parents become more informed, confident advocates.
Three Organizations Every Disability Parent Should Put in Their Toolbox
Three disability organizations every parent should know: State DD Councils, Protection & Advocacy organizations, and Parent Training Centers. Learn what they do, when they can help, and how to find yours.
What Happens If Something Happens to You?
None of us likes to think about emergencies, but having a plan in place can provide peace of mind for you and security for your loved one. Learn eight essential steps every disability family should take to prepare for the unexpected, from choosing an emergency caregiver to organizing legal, medical, and financial documents.
Back-to-School with an IEP: Answers to the 10 Questions Parents Google Every August
Starting a new school year with an IEP can bring both excitement and uncertainty. In this guide, we answer the 10 most common back-to-school questions parents ask every August and share practical tips to help you prepare, communicate with your child's school, and start the year with confidence.
Summer Is the Perfect Time to Explore Careers: Free Career Assessments and Transition Tools for Teens and Adults with Disabilities
Summer is the perfect time for teens and adults with disabilities to explore career interests. Discover free career assessments, vocational planning tools, and transition resources that help identify strengths, interests, and meaningful employment opportunities.
Does My Child Need Guardianship at Age 18?
Does My Child Need Guardianship at Age 18? Understanding Guardianship vs. Supported Decision-Making: Wondering if your child with a disability needs guardianship at age 18? Learn the differences between guardianship and Supported Decision-Making and explore which option may be right for your family.
Traveling Looks Different for Us and That’s Okay: Traveling with our daughter with Down syndrome and Autism
There was a time when the thought of traveling with my daughter filled me with anxiety. Not the typical parenting kind of anxiety. The kind where I would lie awake…
Executive Functioning Supports for Summer: Apps, Visual Schedules, and Routine Tools for ADHD, Autism, and Developmental Disabilities
Summer can disrupt routines for individuals with ADHD, autism, and developmental disabilities. Discover executive functioning tools, apps, and strategies that build structure, independence, and confidence.
Finding Summer Camps and Programs for Individuals with IDD, Autism, and Developmental Disabilities
Summer can be a meaningful season for growth and connection for individuals with intellectual and developmental disabilities (IDD), autism, and other developmental disabilities but finding the right program often takes early planning and the right questions. This blog walks families through practical steps for identifying supportive summer camps and programs, including how to evaluate staff training, explore 1:1 support options, understand funding resources like Medicaid waivers, and tap into local networks such as parent groups and disability organizations. With thoughtful preparation, families can find programs that align with their loved one’s needs, interests, and support level, helping make summer both safe and enriching.
When Mental Health and Developmental Disability Overlap
Mental health challenges can look different in individuals with intellectual and developmental disabilities and 22q11.2 Deletion Syndrome. This Mental Health Awareness Month, learn how to recognize concerns early, navigate barriers to care, and find support for both your loved one and yourself as a caregiver.